Trip to U.C.S.F

Here my baby smiles in spite of her cancer. That is her father in the background looking out over the city. We are visiting her Dr. and getting the results of her latest MRI scans. Now you have to know that she had battled 1 glio in the center of her speech area, then a second glio was removed from her motor cortex area and then on this day we were getting the opinion of a possible third over the top of the same area of the brain where they had just removed the second. We had been told that what they saw on the mri scan was edema and not a cancer then we got a call and here is what I posted on her caringbridge web site.

SUNDAY, MARCH 14, 2010 1:23 PM, CDT

Okay, right now I am a lot confused, disillusioned, and really ticked off! I do not understand why some diagnosis goes back and forth like a tennis ball in a serious match! The MRI that Amanda had on Friday shows that the cancer they told us she does not have "has shown signs of rapid growth" HUH? ? ? ? ?  I don't get it! The doctor that told us this said that she needs a second opinion. So that is what we are going to do. 

After the second opinion we ended up having surgery and that proved to be her last. They gave her four months and it was barley six weeks. They called it P-Net... It is nasty, ugly, worse kind of cancer you can get in the brain. Every one gave up on her and we felt abandoned by the medical community... NO one would treat her anymore... they said keep her comfortable. It was like a total black out and complete silence... We were so scared and lost